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General Practice Data & Data Opt-Out

General Practice Data

The Hicks Group is one of many organisations working in the health and care system to improve care for patients and the public.

Whenever you use a health or care service, such as attending Accident & Emergency or using Community Care services, important information about you is collected in a patient record for that service. Collecting this information helps to ensure you get the best possible care and treatment. With your consent the information is shared between services to ensure a safe and effective service.

General Practice Data for Planning and Research

How the NHS and care services use your information. Click below for a short video:

How the NHS uses your patient data from GP practices to improve health and care - YouTube

From 1st July 2021, the NHS will change how it share shares your GP medical record. The General Practice Data for Planning and Research data extract by NHS Digital from GP practices across England will help the NHS to improve health and care services for everyone by collecting patient data and holding it in a central national database.

This is an upgrade to an existing similar process called GPES - General Practice Extract Service. The new data collection will be more efficient, effective and much more frequent. For example, patient data held in this ew data base can help the NHS to:

  • Monitor the long-term safety and effectiveness of treatments
  • Plan how to deliver better health and care services
  • Prevent the spread of infectious diseases
  • Identify new treatments and medicines through health research

The national data opt-out is a service that allows patients to opt out of their confidential patient information being used for research and planning. There is much more information about this process in the link below

https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research

You have a choice about whether you want your confidential patient information to be used in this way. If you are happy with this use of information you do not need to do anything. If you do choose to opt out your confidential patient information will still be used to support your individual care.   You can change your mind about your choice at any time.

Type 1 Opt-out (opting out of NHS Digital collecting your data)

NHS Digital will not collect your data from the GP practice if you who have registered a Type 1 Opt-out with their practice. There is form below that you can complete and send or email to the practice.

Type 1 Opt-out form

This collection will start on 1 July 2021 so if you do not want your data to be shared with NHS Digital please register your Type 1 Opt-out with your GP practice by 23 June 2021.

If you register a Type 1 Opt-out after this collection has started, no more of your data will be shared. NHS Digital will however still hold the patient data which was shared before you registered the Type 1 Opt-out.

National Data Opt-out

If you do not want NHS Digital to share your identifiable patient data with anyone else for purposes beyond your own care, then you can also register a National Data Opt-out.

National Data Opt-out (opting out of NHS Digital sharing your data)

Data will be collected from GP medical records about patients who have registered a National Data Opt-out. The National Data Opt-out applies to identifiable patient data about your health, which is called confidential patient information.

If you have registered a National Data Opt-out, NHS Digital won’t share any confidential patient information about you with other organisations unless there is an exemption to this, such as where there is a legal requirement or where it is in the public interest to do so, such as helping to manage contagious diseases like coronavirus.

Patients can view or change their national data opt-out choice at any time by using the NHS App, the online service at www.nhs.uk/your-nhs-data-matters or by calling 0300 3035678.   

  • There is no 30th September deadline for opting out of sharing your data. You can opt out at anytime
  • NHS Digital will never sell your data
  • There are strict rules about how the NHS can use your data and it will always be shared securely and safely.

 

Health and care organisations have until July 2021 to put systems and processes in place so they can be compliant with the national data opt-out and apply your choice to any confidential patient information they use or share for purposes beyond your individual care. Our organisation ‘ is not currently’ compliant with the national data opt-out policy.



 
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